This book is about our experiences of living with Cystic Fibrosis from birth to one year post double lung transplant.

A beautifully honest book detailing the family’s rollercoaster journey living with serious childhood illness. This book provides a key insight into the many challenges that they faced and also inspiration for others affected by serious illness.

(Barretstown Ezine)

Living Life on a Rollercoaster

I wrote the book as if we were having a face to face conversation and I was telling you what it has been like as mother and carer nursing my two children with Cystic Fibrosis for almost twenty years.

I think it’s important to see the story from different perspectives so my son and daughter also share in some of the chapters about what it has been like for them living with long term illness.

As you journey with us through our story you will read about what it is like living with CF (chapter 3), the challenges of learning about new medications and treatments (chapter 4), the effects of CF on normal, everyday life (chapter 5 and 7), how we coped in tougher times (chapters 9 and 13), our experience of the transplant route (chapters 10-14), some positives that came out of tough times (chapter 17) and life in the year after transplant (chapter 18).

The book costs €15. For post and packing, anywhere outside Ireland, please add €5.00